This blog invites you to read about the people behind a disease. Patients. Healthcare staff. Families. Support Groups. It tells their life stories, struggles and triumphs.
I will try to highlight as many diseases as possible along with the life stories of those behind the “scene”. For now, this blog is centred in Malaysia where I am based.
The origins of this blog is pretty simple. After quitting my full-time job as news editor at a newspaper in 2014, I spent some time decompressing and to do things that I had neglected.
Now, in the new year (well, we are nearly halfway through 2017), I felt it was time I used some of my free time to do what I love most. Writing. And because I have written health stories for most of my professional life, the idea was to merge the two.
There are enough scientific/health-based stories out there. So, what I have decided to do is to introduce you, the reader to the human side of a certain disease.
The plan is this: To take a disease one at a time, meet and interview people, and post their stories.
I reckon it might be difficult along the way because who actually wants to talk about themselves. But I will try.
As a Type I diabetic since age 10, I can safely say it is difficult to live with a medical condition that you know will never go away. Barring they find a cure for diabetes. The seemingly horrible “death sentence” of being a diabetic is always there.
If I get blurry vision, I get paranoid. Am I going blind because of diabetes? If I feel dizzy, am I having a low blood sugar episode? Btw, double vision while you are driving is so not fun. And yes, will it even be possible to find a partner who will accept your condition.
Call that last statement crazy. After all, get the disease under control and all will be fine, right? After all, diabetes has been with us for decades. Well, it’s not that easy. We are human, after all. And things were never made to be easy.
But I digress. So, all I can hope is that you read the stories and realise that there is life after diagnosis. And behind that patient, there is a whole network of people acting as a crutch to prop them up.